Note: I have a nephew who received a kidney several years ago and a church member last year. I have seen firsthand the difference in their quality of life and the gift a sister and a stranger made to their lives. Thanks for sharing this message and request, Phelicia.
Good evening everyone!
For some of you this email will serve as an update and for some of you this will be news. I would like to state that those that know were told in person, I really never wanted to send this through email, but better late than never. For many of you the time just wasn’t right. This isn’t a conversation topic for choir rehearsal or tailgating during homecoming.
I have been diagnosed with stage 4 kidney disease. I was diagnosed December 2010. Yes, I have been living and dealing with this for four years now, but God is good! Upon my diagnosis I was told I would be on dialysis within 18 months and four years later I’m still not hooked to a machine! *praise break* I have a very strict diet, I take medication every day and I see my nephrologist every six weeks. However I am in need of a transplant.
Almost all of you have known me longer than four years and can at this point attest to the fact that I have not let this rule my life or define my future. I am extremely blessed that I have a doctor who is also a believer. He tells me what the test results show because that’s his job, but he is keenly aware God has the final say.
Why am I sharing this with you now? Good question! There are two reasons. Out of the few people I shared this with everyone had the same reaction but one person. Rather than cry they looked at me in disbelief that I had been “sitting” on this information for years. They felt sharing this with others going through their own trials and tribulations could serve as a source of inspiration. So, my first reason is to inspire any and everyone who needs to see that your circumstance or your diagnosis does not define you and that happiness is a choice. My second reason is to bring awareness to the disease and encourage as many people as possible to become organ donors. I don’t remember at what age I was asked about organ donation at the DMV, but I immediately said yes. When God calls me home if there is anything I have that can help another person live even just another day I want them to have it. I’m hoping now that it’s a little closer to home those of you on the fence about it will reconsider your decision.
There are a few of you that inquired about being a living donor and you have NO IDEA how great that makes me feel. That is love on another level! Anyone interested in learning more about the process or to find out if they qualify please contact Karen Chamberlin at 252.744.5734 and give her my name as the patient where your interests lie. I know this is a serious decision, but I would be remiss if six months from now I am on dialysis all because I didn’t put forth any effort regarding a living donor. My doctor told me I at least needed to try, and he was right. There are some that have already been denied but are looking for ways to continue to support and be an advocate for me. Again, thank you SO much.
God gave this to me at 4 o’clock in the morning about a week ago (hits shmoney dance) and naturally it was perfect timing because March is National Kidney Month. I am asking for three days out of next month from each of you on your social media platforms. What better way than that to get information out quickly to as many people as possible? God moves in mysterious ways and who knows what may come of this.
Step 1 – On March 1st please post the picture that says “Kidney Disease Awareness” with the green ribbon. In the written section feel free to write what you wish regarding me, the disease, faith, hope, whatever comes to mind. Please post on your social media networks and if you have Instagram, please tag me (@phe_nominal) and use the following hashtag #KidneyDiseaseTeamP
Step 2 – March 12th is World Kidney Day. Please wear green or a green ribbon and post a picture of yourself. The message should say “I wear green for someone I need in my life. Cure kidney disease.” I have also attached a picture that says the same thing. For those that are photo grid or photo collage savvy, feel free to post the message on one side and your picture on the other. Again, post it everywhere and tag me on Instagram. I will be reposting every single one! Please utilize the same hashtag #KidneyDiseaseTeamP and #WorldKidneyDay2015
Step 3 – March 31st will be the last day of National Kidney Month and I would like to close out the month encouraging people to become organ donors. There is a picture attached that says “Donate Life” and that is the logo for Donate Life America. The message under this picture should say, “Would you be shocked to find out an average of 18 people die every day due to the shortage of available organ donors? In total, there are more than 120,000 Americans awaiting their organ transplants, while millions of people die each year without signing up as organ and tissue donors. Sadly, an additional person shows up on the organ transplant list every 10 minutes. A single organ donor has the potential to save up to 8 lives.” Once again use the hashtag #KidneyDiseaseTeamP as well as #DonateLife and tag me in it on Instagram.
Naturally, all of this is optional, but if you’re on this email list you are close friends and family and I wouldn’t ask you to do anything for me that I wouldn’t do in return. I know this email was quite long, but I’m giving it to you just as God gave it to me. In all honesty finding a match, a living donor would be so amazing. But just seeing the posts and feeling the love from all of you, knowing you’re in this fight with me would be priceless. Writing this email is already a weight lifted. Now I don’t have to feel bad because I haven’t had a chance to tell someone, soon everyone will know! Now when you see the pharmacy in my purse you won’t wonder why! And when I just need a break or need to sit down or can’t eat a particular food you offer to me in your home, you’ll know why.
I love each and every one of you! I feel beyond liberated and of course if you have any questions feel free to reply (not reply all…lol) to this email or give me a call at 704-560-1025.
Have a great night!!!